EHCPs age in strange ways. They don’t wrinkle or fade; they just quietly drift out of date until one day you realise you’re still working from a description of your child written when TikTok was new and Andrew was ten. His last full update was in 2019, which meant that by late 2024, his EHCP was basically a historical artefact - a blurry photograph of a boy who no longer exists.
The first hint that this might be a problem came at Andrew’s Annual Review in November 2024, when his school casually mentioned that they believed he met the criteria for Profound and Multiple Learning Disability (PMLD). They said it as if they were commenting on the weather - “Oh, by the way, we think Andrew is PMLD now”. And then … nothing. No request to update the EHCP. No statutory process triggered. Just the observation, left floating in the air like a balloon someone forgot to tie down.
Fast‑forward twelve months to the Annual Review in November 2025, and the same school expressed surprise - genuine surprise - that Andrew’s EHCP still didn’t reflect PMLD. As if the document might have updated itself overnight, perhaps out of sheer enthusiasm. This time, someone remembered to tick the box requesting an EHCP amendment. Progress.
The local authority took one look at the request and did something unexpectedly sensible: they said that PMLD can’t be diagnosed by a school, and that a formal determination would need to come from an Educational Psychologist. And then, crucially, they didn’t just say it. They acted on it.
With our agreement, the LA triggered a full statutory reassessment. And here’s where things took a turn for the better. The LA’s statutory assessment team were not only responsive, but genuinely willing to be steered. Every time I pointed out a deadline, a guideline, or a procedural requirement, they adjusted course without fuss. It was like watching a ship that actually responds when you tap the rudder.
Together, we kept the process tightly on track. Assessments were booked promptly. Reports were chased. Timescales were held. And by the end of the 2025/26 summer term, the reassessment was complete and a new EHCP was ready - just in time for post‑19 College applications opening on 1 September 2026.
The outcome was clear and unequivocal: Andrew meets the criteria for PMLD, with functioning described at A03 - the level that reflects his reliance on others for all aspects of learning, engagement, and daily living. None of this was news to us, of course. We live with Andrew. We know his sensory world, his rhythms, his joys, his limits. But having it formally recognised matters. It anchors the EHCP in reality rather than optimism.
The reassessment also forced a kind of emotional stock‑take. You spend years advocating, adjusting, firefighting, and then suddenly you’re asked to articulate - in writing - the whole of your child’s life. What he can do. What he can’t. What he needs. What he deserves. It’s a strange experience, being both parent and witness.
But the final EHCP is strong. It reflects Andrew as he is now: a young man with PMLD, with a rich sensory profile, with a need for highly specialised support, and with a future that depends on the right environment.
And that’s exactly what we need as we step into the world of FE applications.